Brain Injury Care Provider

Understanding the impact of Epidermolysis Bullosa

As a group of rare diseases, you may not be aware of what Epidermolysis Bullosa (EB) is or how the conditions impact those affected.

This skin condition causes the skin to blister and tear when met with friction or slight trauma.

As you can imagine, this skin sensitivity makes daily activities much more strenuous, as any sort of contact can cause these painful blisters.

What are the different types of EB?

To support someone with EB, you must first understand which type of condition they have.

In total, there are around 27 variants of EB, however, the main two types are EB Simplex (EBS) and Dystrophic EB (DEB).

Affecting around 70 per cent of those with EB, EBS is the most common type and is, typically, first seen in childhood.

The most common symptoms associated with this type of EB are painful blisters on the hands and feet.

Whereas, DEB affects a much smaller proportion of individuals, equalling around 25 per cent of those with EB.

It differs from the former type of EB as the blisters tend to scar, which can result in painful joints. If the blisters occur inside the body, this can also result in difficulty with eating and swallowing. 

How can this be treated?

Unfortunately, there is currently no cure for EB. However, there are treatments available to alleviate symptoms and target them early to prevent infections.

Prevention plays a key part in treating this condition so it is important to avoid situations in which the symptoms are triggered.

At Almond Care, we have specialists on board that tailor their interventions and therapies depending on the client’s needs.

Depending on the severity of the condition, this may involve providing treatment of blisters, PEG feeding support, nutrition management and pressure sore prevention.

Do you or one of your loved ones need support? Contact us.


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For a free, no-obligation discussion about our UK complex care in the home for brain injury, spinal cord injury, long-term ventilation, cerebral palsy, multiple sclerosis, muscular dystrophy and other neurological conditions, please click here or call 024 7610 2333.